Society of Haemophilia and Allied Disorders

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Malawi joins the World Federation of Hemophilia

We are delighted that our friends in the Society of Haemophilia and Allied Disorders in Malawi continue to go from strength to strength.  They were accepted as an Associate Member of the World Fede…

Source: Malawi joins the World Federation of Hemophilia

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Haemophilia Clinic

14991142_1438648676163562_2966362541939999357_oThe Society of Haemophilia and Allied Disorders with support from NNHF, Haemophilia Scotland and the Ministry of Health opened its first treatment centre at Kamuzu Central Hospital in Lilongwe  on 11th  November 2016. The guest of honour was the Minister of Health, Hon. Peter Kumpalume, MP.  Over 200 people showed up for screening and out of these, 40 were found with haemophilia.  Previously in Malawi, there was only 6 known patients of haemophilia.

New Awareness Raising Posters Launched

 

have-you-got-a-blood-clotting-disorder

Working with our friends at Haemophilia Scotland we are producing a thousand A2 posters in English and Chichewa to find people who might have a bleeding disorder.

diagnose-malawi-poster

Click here to download your printable copy of the poster in English.

We have already run 19 training sessions at district hospital which mean that the 343 healthcare professional who took part now know how to spot someone who might have a bleeding disorder and how to refer them.

The posters highlight the following symptoms,

  • Excess bleeding after trauma, a procedure, or childbirth.
  • Headaches combined with facial, arm or leg weakness in someone who has significant bruising.
  • Nose bleeds.
  • Swollen joints or muscles; red, painful, immobile, hot to touch.
  • Bruising and iron deficiency.
  • Blood in urine or bowel movements.
  • Heavy bleeding at menstruation.

The posters advise anyone who thinks they have a bleeding disorder or have a patient with a suspected bleeding disorder to get in touch with SHAD for more information.

The posters are supported by a radio add campaign which you can also hear on YouTube.

Email. hello@haemophilia.mw
Facebook. facebook.com/SHADMalawi
Twitter. twitter.com/SHADMalawi

People are also advised that they can contact Dr Y Miombe directly,

Mobile/SMS. 0994969108 (SMS preferred)
SMS/Whatsapp. 0881405108 (Whatsapp preferred)
Email. yohanniemiombe@googlemail.com

This part of our work to improve the number of people diagnosed with bleeding disorders in Malawi is supported by funding from The Scottish Government.

Patients Diagnosis Camp

The Society of Haemophilia and Allied Disorders with support from Novo Nordisk Haemophilia Foundation, Haemophilia Scotland and the Ministry of Health is pleased to announce the opening of its first Haemophilia Clinic in Malawi.

In Malawi, people with haemophilia do not know that they have the disease because there are no laboratory facilities to diagnose the disease. But such a laboratory unit will be opened on 11th November, 2016 at Kamuzu Central Hospital. Please provide your name or that of your child by sms to 0994969108 or 0881405108 if you suspect that you have haemophilia or if you know anyone who may have haemophilia so that they can be invited to Lilongwe for laboratory testing on 11th November 2016.

Chim is exchanging information at #WFH2016 in Orlando

Chim at WFH

Chim finds out how her case study is being used at the World Federation of Hemophilia Conference in Orlando, USA.

 

Chimwemwe Chande is playing a vital role in our work to give people in Malawi the chance of a laboratory diagnosis.

Until recently, it has been very difficult to be sure exactly which condition someone with a suspected bleeding disorder, such as haemophilia, actually has.  Without a diagnosis it is difficult to give the right treatment.

Chim has been working with our friends in Haemophilia Scotland and the Novo Nordisk Hemophilia Foundation help make sure more healthcare professionals can spot potential conditions so people can be referred to the new haemophilia clinics which are being set up.

We are really pleased she had the opportunity to travel to the World Federation of Hemophilia conference in Orlando, USA.  She is learning about the treatment of bleeding disorders and making sure the rest of the world knows about the work being done in Malawi.

Raising awareness with newspaper adverts

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The awareness raising part of the Diagnosis Project we are working on with Haemophilia Scotland got off to a great start with these newspaper adverts.

We hope that they will help more people think about whether they might have an undiagnosed bleeding disorder and get in touch.

SHAD joins Facebook

SHAD on Facebook

You can now get in touch with the Society of Haemophilia and Allied Disorders (SHAD) in Malawi on Facebook.

We have launched a page so that anyone in Malawi who wants to find out more about our work can find us.

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Contacts

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